Showing posts with label Lydia CF. Show all posts
Showing posts with label Lydia CF. Show all posts

Tuesday, March 20, 2012

Sweat Test #2







Today was long. I have attached a letter that Will sent our pastor, so you all can have an update too!
Thanks so much for all of your love and prayers!!



Dear FPC family,

Kristee and I cannot adequately express in words our gratitude to you for your thoughts and prayers for Lydia leading up to today's appointment at Children's Hospital. We are most grateful to our Heavenly Father, who hears and answers prayer.

We are encouraged by the results of todays' visit and lab results. Lydia was referred to a Pediatric Pulmonologist after a Sweat Test performed locally returned abnormal findings typical of sufferers of Cystic Fibrosis. The Sweat Test performed in Birmingham returned normal results and are accepted as Most Reliable, ( We have two Accredited Centers for the diagnosis and treatment of Cystic Fibrosis in Alabama, B'ham and Mobile) . Even though the Accredited test would point to some other diagnosis, Dr. Troxler, after listening to Lydia's health history, ordered genetic testing and 4 other studies, centered on Lydia's ability to absorb vitamins and throat culture to determine the prescence of bacteria normally found in CF patients. Some of these conclusions will come sooner than others.Genetic test results being the last piece of the puzzle, 4-6 weeks. We are scheduled to follow up May 2nd.


We take comfort in the non diagnosis of CF and that people who do endure the disease have a wonderful team of Doctors, Nurses, and Researchers working not only to give care but find a cure. God has blessed Lydia with Exceptional Caregivers and a Prayerful Church Family. We are grateful to God, that while Lydia's needs our uncertain to us, they are known to Him who can do immeasurably more than all we can ask or imagine. And we ask for Grace and Healing on her behalf. We ask that you continue to remember Lydia in your prayers.
In Christ,
Will and Kristee

Monday, March 19, 2012

Tomorrow

Family and Friends,

We are off to Birmingham tomorrow morning to repeat the Sweat Test and then we will see the Doctor afterwards. We would love your prayers!

Specific prayer requests:
1. Praying the Dothan sweat test results are wrong.
2. Peace and comfort, if the results are not wrong.
3. Safe trip to and from Birmingham

Love,
Kristee

Friday, March 16, 2012

Sweet and Salty

I debated on putting the latest news on here, but I have had so many people ask me about Lydia's tests.

We did not get the news we were hoping for today. Dr. Ogunbi called and said the "sweat test" came back abnormal. The Sweat Test is to check for Cystic Fibrosis. 

Dr. Ogunbi is making Lydia an appointment with a Pulmonary Doctor in Birmingham for additional tests. We will know more about her treatment after we see the Pulmonologist.

Will and I are both doing good and know that God is in complete control. He has his hands wrapped all around our sweet and salty girl and has big plans for her. 

Thanks so much for all of your prayers.

"Don't worry about anything, but, in everything through prayer and petition with thanksgiving, let your requests be made known to God. And the peace of God, which surpasses every thought, will guard your hearts and your minds in Christ Jesus" (Philippians 4:6-7)