Tuesday, March 20, 2012

Sweat Test #2







Today was long. I have attached a letter that Will sent our pastor, so you all can have an update too!
Thanks so much for all of your love and prayers!!



Dear FPC family,

Kristee and I cannot adequately express in words our gratitude to you for your thoughts and prayers for Lydia leading up to today's appointment at Children's Hospital. We are most grateful to our Heavenly Father, who hears and answers prayer.

We are encouraged by the results of todays' visit and lab results. Lydia was referred to a Pediatric Pulmonologist after a Sweat Test performed locally returned abnormal findings typical of sufferers of Cystic Fibrosis. The Sweat Test performed in Birmingham returned normal results and are accepted as Most Reliable, ( We have two Accredited Centers for the diagnosis and treatment of Cystic Fibrosis in Alabama, B'ham and Mobile) . Even though the Accredited test would point to some other diagnosis, Dr. Troxler, after listening to Lydia's health history, ordered genetic testing and 4 other studies, centered on Lydia's ability to absorb vitamins and throat culture to determine the prescence of bacteria normally found in CF patients. Some of these conclusions will come sooner than others.Genetic test results being the last piece of the puzzle, 4-6 weeks. We are scheduled to follow up May 2nd.


We take comfort in the non diagnosis of CF and that people who do endure the disease have a wonderful team of Doctors, Nurses, and Researchers working not only to give care but find a cure. God has blessed Lydia with Exceptional Caregivers and a Prayerful Church Family. We are grateful to God, that while Lydia's needs our uncertain to us, they are known to Him who can do immeasurably more than all we can ask or imagine. And we ask for Grace and Healing on her behalf. We ask that you continue to remember Lydia in your prayers.
In Christ,
Will and Kristee

3 comments:

  1. What sweet news! Big hugs to Miss Lydia.

    And such a beautiful letter by your man.

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  2. Hey, Kristee! Will and I grew up together in Dothan, and a friend sent me the link to your blog so that I could be praying for sweet Lydia. I will certainly add her name to my prayer journal and add your blog to my reader so that I don't miss any updates on your precious family. So sorry she is having to go through all of this. It can be so hard to understand, and yet we know that God is nothing but good and love. Blessings to you and Will!

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  3. Sweet sweet girl. I am so glad the diagnosis is negative. The letter your husband wrote is beautiful. Good luck with the next stage of testing.

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